Q
: 1
09/13/2009 |
Is there any known connection between PKD and polycystic ovarian syndrome?
No, not that I am aware of.
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Q
: 2
07/20/2009 |
Could PKD be misdiagnosed as kidney cancer?
It is very, very unlikely. There would be major differences radiologically and pathologically.
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Q
: 3
04/20/2009 |
I am 50 years old. My father died from PKD when he was 45 years old. About 6 to 7 years ago I got ultrasound test and the result was that I was okay. Only two cysts were observed of the size of a coin. I got an ultrasound last week and this new test result is "Multiple bilateral renal cysts without calculi or obstruction." I am awaiting for insurance approval for nephrologist who I hope to see soon.
In the mean time I have questions regarding to life expectancy and complications of my condition.
Could you give me more information about bilateral kidney transplant and the rate of success?
So far it's 100%, the statistics on are on our Web site: http://www.umm.edu/transplant/bilnephtrans.htm. We'd be happy to see you in the office if interested. You can call 410-328-5408 for an appointment.
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Q
: 4
04/06/2009 |
Could you please describe the benefits of removing PKD kidneys when a transplant is performed?
In this setting, you don't have the diseased, enlarged kidneys anymore. Many have symptoms of pain, enlarged abdominal girth, early satiety/shortness of breath due to the size of the kidneys are eliminated by removing the diseased kidneys at the same time.
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Q
: 5
04/04/2009 |
My husband has poylcystic kidney and liver. The liver has not posed a problem but his Kidney function is about 62% and his stomach is extremely distended. In the last week and a half at least 4 major cysts have broken, causing him an extreme amount of pain. How does this factor in for him as to when he needs to be put on a transplant list? Or should he try to have some of the cysts drained? Or have the kidney scraped? My husband is 57 and otherwise in good health.
I think getting a center well equipped to handle PCKD is helpful. When you don't need transplant, sometimes laparoscopic cyst decortication helps to eliminate some of the larger cysts. If you're headed to transplant, at Maryland we simultaneously remove the kidneys when doing the transplant.
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Q
: 6
03/07/2009 |
I have PKD and am currently on dialysis. A recent CT scan has determined that each of my kidneys is approximately 42 cm. Obviously, I am experiencing a lot of difficulty in functioning.
I am currrently undergoing the transplant evaluation process. It has been suggested that I undergo a nephrectomy.
My concern is that it does not appear to me that they have a lot of experience with bilateral nephrectomies.
I've read on-line some of the bad experiences people have had undergoing this procedure.
I would consider having the procedure done there if my insurance is approved.
Can you arrange for someone to call me to discuss?
I strongly recommend transplant and simultaneous transplant, but much of the workup is done on the transplant side of the equation. I would call the University of Maryland transplant department, and ask for Deb Evans--she will call you back punctually. The number to call is 410-328-5408. If you are able to get seen and worked up here, the simultaneous option might be a good one for you. I'd be more than happy to discuss with you if the transplant side is progressing.
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Q
: 7
02/20/2009 |
I had a successful trasnplant in 2007 but I wish they would have removed my PKD kidneys at the same time. I am now having them removed in early March through a hand-assisted arthroscopic procedure. My kidneys are huge and I'm hopeful that they can perform minimally invasive surgery, but it seems dangerous to me as they need to slowly drain cysts until they can remove the kidneys. Any insight you can provide to me about this surgery would be appreciated.
That actually may be successful done laparoscopically, even though they drain them first. I wouldn't worry about that technique, it's generally sound.
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Q
: 8
02/03/2009 |
My mother suffers from Bilateral kidney disease. Her doctor told us that kidney transplant is the only option. Is there any other treatment for this disease?
I strongly recommend simultaneous nephrectomy/transplant. Call Debbie at 410.328.6087 if interested, and we can schedule appointments for you with the appropriate people.
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Q
: 9
12/17/2008 |
I have PKD and had a kidney transplant in October 2007. While my new kidney is working well, I don't feel well physically. I have my native kidneys, and am told they are quite large as is my liver which is functioning well. I am overweight, but I look pregnant. Since my trasnplant my abdomen is larger and my new kidney quite noticeably sticks out my right side. Should I consider nephrectomy? All/partial? Are my risks high due to immunosuppressants? The hospital that did my transplant told me that they really don't want to remove old kidneys unless absolutely necessary.
I would certainly consider coming for a consultation. Removing the kidneys will certainly elminate that "pregnant" look that you have, and eliminate some discomfort. Of course it does have risks that we'll have to weigh. If you would like to discuss this, call Debbie at 410.328.6087 and we can get in touch.
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